Time to dig in

It’s been a long emotional few weeks in the R family, last month my eldest daughter had a little numbness in her legs followed by pins and needles after pulling her back at work, something we thought nothing of. That is until last week when it became worse, so I took her to see the doctor who immediately refereed her to the hospital…anyway to cut a long story short after an MRI and seeing a neurologist she’s been diagnosed with Multiple sclerosis. Since last week she is barely able to stand and in a wheelchair for most of the day, perhaps worse is unable to look after her little boy on her own at the moment.

Talk about punch in the gut, so far my youngest daughter has moved in with her to help out, the whole family along with her friends, doctors, nurses, specialists, schools…have pulled together, really it’s been so incredibly humbling how everyone has responded. The NHS have been amazing, literally nothing has been too much bother for them. They adapted her house the same day she was diagnosed (rails, wheelchair, new bath etc.etc.) and are not only moving her to a bungalow but providing a full time personal assistant to help out. Wow.

…anyway…I know you’ll all understand if i’m missing a day here or two days there and I just wanted to share the bigger picture with you all. 2021 eh.

I’ll probably use this thread to get things off my chest over the coming weeks, months, so please don’t mind me if i’m waffling on in here. R.

3 Points

Damn, man!

I wish I could do something, if there’s anything you know how to contact me.

1 point

Geesh R, I am so sorry she is going through this, and your family. Glad they are helping her out though. May I ask how old she is? I know a 21 year old diagnosed with MS, it is misery for her.
I hope that with treatment and help she can start feeling like herself again soon! We are here for you!

1 point

So sorry to hear this, sending good wishes your way.

1 point

Positive vibes your way man. That’s a very unfortunate situation.

1 point

Damn.

Small silver linings, though. https://www.ms-uk.org/medical-cannabis-now-available-nhs

1 point

Keeping fingers crossed here that it doesn’t get any worse for her, and preferably gets better (if it can).

1 point

Thank you elsels, yeah she’s only 23 the specialist has said she has a good chance of a pretty normal life due to her young age. also the lesions on her brain are apparently healing nicely, which we were most worried about so that’s a thing.

Her boss at her work had me in tears yesterday, they’ve just had a refit and moved all the offices upstairs…today they are starting to move it all back downstairs how it was, on the chance she’ll make it back. lol wtf.

3 Points

I just sent this to her and got a page of smiley emojis back. :rofl:

1 point

Cheers VT, I’m being assured by everyone who we’ve spoken to that it will improve, may even be unnoticeable for periods, so yeah fingers crossed.

1 point

Thank you, truly appreciate it.

1 point

Thank you for you’re kind wishes everyone!

1 point

Sad to hear such news. The optimistic side of me is hopeful because of her age there is great hope that the future tech will be developed to help by the time it starts having dramatic impact.

At least I hope that is the case.

1 point

Things are looking up, after a course of steroid tablets and then 2 steroid infusions this week she has started to regained feeling in the her lower half of her body today, and managed to walk up and down using railings (I asked to play Eye of the Tiger but they wouldn’t let me) she was in a bit of pain after this which is good as she couldn’t feel anything before then promptly fell asleep. Fingers crossed it looks like we’re on the up and up!

5 Points

Just heard she’s now walking a short distance unaided. There’s a shopping center under the hospital if ever she needed more motivation she’s a ready talking about tackling the stairs.

5 Points